- 1 - HC-KAR CNR: KAHC010673102024 NC: 2026:KHC:53333 WP No. 32746 of 2024 IN THE HIGH COURT OF KARNATAKA AT BENGALURU DATED THIS THE 25TH DAY OF SEPTEMBER, 2026 BEFORE THE HON'BLE MR. JUSTICE B.PRAMOD WRIT PETITION NO.32746 OF 2024 (GM-RES) BETWEEN: PARENTS OF CHILDREN SUFFERING FROM RARE GENETIC DISORDER DISEASES IN STATE OF KARNATAKA REP. BY KALPANA RESIDING AT NO.13/27, 1ST CROSS SUBHASHNAGAR, OPPOSITE BESCOM NELAMANGALA-562 123 …PETITIONER (BY SRI AMRUTHESH N. P., ADVOCATE) AND: 1. STATE OF KARNATAKA THROUGH ITS CHIEF SECRETARY VIDHANA SOUDHA BENGALURU-560 001 2. THE PRINCIPAL SECRETARY DEPT. OF HEALTH AND FAMILY WELFARE VIDHANA SOUDHA BENGALURU-560 001 3. THE COMMISSIONER DEPT. OF HEALTH AND FAMILY WELFARE ANANDA RAO CIRCLE BENGALURU-560 009 4. UNION OF INDIA THROUGH SECRETARY MINISTRY OF HEALTH AND WELFARE NIRMAN BHAWAN NEW DELHI-110 011 Digitally signed by SHARADAVANI B Location: HIGH COURT OF KARNATAKA - 2 - HC-KAR CNR: KAHC010673102024 NC: 2026:KHC:53333 WP No. 32746 of 2024 5. INDIRA GANDHI INSTITUTE OF CHILD HEALTH DHARMARAM COLLEGE POST NEAR NIMHANS BENGALURU-560 029 REPRESENTED BY ITS DIRECTOR …RESPONDENTS (BY SRI MANJUNATHA RAYAPPA, A.G.A., FOR R-1 TO R-3, SRI UNNI KRISHNAN M., ADVOCATE FOR R-4, SRI N. K. RAMESH, ADVOCATE FOR R-5) THIS WRIT PETITION IS FILED UNDER ARTICLES 226 AND 227 OF THE CONSTITUTION OF INDIA PRAYING TO ORDER OR DIRECTION TO THE RESPONDENTS TO TAKE ALL STEPS NECESSARY TO PROVIDE TO THE PETITIONER'S CHILDREN CONTINUOUS, UNINTERRUPTED TREATMENT FREE OF COST, TO BEAR THE EXPENSES OF SUCH TREATMENT AND RELEASE THE NECESSARY FUNDS AS SOUGHT IN AKuKasa/T/2948/2024-25 DATED 25.10.2024 AT ANNEXURE-L. THIS PETITION, COMING ON FOR ORDERS, THIS DAY, ORDER WAS MADE THEREIN AS UNDER: CORAM: HON'BLE MR. JUSTICE B.PRAMOD ORAL ORDER Heard Sri. Amrutesh N P, learned counsel for the petitioner, Sri. Manjunatha Rayappa, learned AGA for respondent Nos. 1 to 3, Sri. Unnikrishnan M., learned counsel for respondent No.4 and Sri. N K Ramesh, learned counsel for respondent No.5. - 3 - HC-KAR CNR: KAHC010673102024 NC: 2026:KHC:53333 WP No. 32746 of 2024 2. The present writ petition is filed by the unregistered Parents of Children suffering from Rare Genetic Disorder. 3. Petitioner is not a legal entity and petitioner cannot maintain the writ petition and the Registry has raised office objection in this regard. 4. As the petitioner is not a legal entity, the present petition as framed and filed by the petitioner is not maintainable. Hence, writ petition is dismissed as not maintainable. 5. Further, this order shall not come in the way of any person suffering from a Rare Genetic Disorder from approaching this Court, in accordance with law, if so advised. The dismissal of the present writ petition shall not come in the way of respondent No.1-State and respondent No.5-Indira Gandhi Institute of Child Health, Dharmaram College, continuing the treatment hitherto provided to the - 4 - HC-KAR CNR: KAHC010673102024 NC: 2026:KHC:53333 WP No. 32746 of 2024 children suffering from Rare Genetic Disorders who are already undergoing treatment, in the interest of justice. Sd/- B.PRAMOD JUDGE Bsv List No.: 1 Sl No.: 1